Race, Ethnicity, and Cystic Fibrosis

Volume 10, Issue 2

Race, Ethnicity, and Cystic Fibrosis

In this issue:

Race and ethnicity. How do they affect a patient’s ability to receive a timely and accurate cystic fibrosis diagnosis? How do the social determinants of health limit access to appropriate CF treatment and produce poorer outcomes?

That’s what we’re here to talk about today with Dr. Jennifer Taylor-Cousar from National Jewish Health and Children’s Hospital Colorado in this eCysticFibrosis Review podcast.

Learning objectives:

Explain how variation in genetic ancestry impacts diagnosis and access to therapy for people with CF from historically marginalized communities.
Describe the social determinants of health that affect outcomes in people with CF from historically marginalized communities.

Author:

Jennifer Taylor-Cousar, MD, MSCS

Medical Director, Clinical Research Services
Co-Director and CF TDC Director, Adult CF Program
Interim Associate Vice President of Diversity, Equity and Inclusion
Professor, Departments of Internal Medicine and Pediatrics
Divisions of Pulmonary, Critical Care and Sleep Medicine and Pediatric Pulmonary Medicine
National Jewish Health
Denver, CO

Guest Faculty Disclosures

Dr. Taylor-Cousar has indicated that she has served as an advisor for 4DMT; served on advisory committees or review panels for Vertex Pharmaceuticals Incorporated, AbbVie, Insmed, and Polarean; and received grant or research support from Vertex Pharmaceuticals Incorporated, Eloxx, and Proteostasis.

Unlabeled/Unapproved Uses

Dr. Taylor-Cousar has indicated that there will be no references to the unlabeled or unapproved uses of any drugs or products. 

Program Directors:

Noah Lechtzin, MD, MHA

Director, Adult Cystic Fibrosis Program
Associate Professor of Medicine
Johns Hopkins University School of Medicine
Baltimore, MD

Peter J. Mogayzel, Jr., MD, PhD

Professor of Pediatrics
Director, Cystic Fibrosis Center
Johns Hopkins University School of Medicine
Baltimore, MD

Donna Peeler, RN

Clinical Nurse
Pediatric Clinic Coordinator
Johns Hopkins Cystic Fibrosis Center
Baltimore, MD

Guest Faculty Disclosures:

Unlabeled/Unapproved Uses:

Dr. Taylor-Cousar has indicated that there will be no references to the unlabeled or unapproved uses of any drugs or products. 

Length of activity:

0.5 hour Physicians
0.5 contact hour Nurses

Launch date: June 21, 2022
Expiration date: June 20, 2024

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