eCysticFibrosis Review

Expert insight and analysis providing information directly relevant to cystic fibrosis care, through topic-focused newsletters summarizing the peer-reviewed literature and accompanying podcasts to illustrate how to apply that information in the clinic.

The Johns Hopkins Great Strides team will be walking to raise money to cure cystic fibrosis on May 15th at the Baltimore Zoo. Please help us by joining our team or making a donation here!

Special Edition 2019

Expired

Adherence & Technology

Authors:
Kathryn A. Sabadosa, MPH
Alex H. Gifford, MD

REVIEW ISSUE

To read past issues, click button below.

Volume 1-7 Newsletter Archive

Special Edition - Supported by educational grants from Vertex Pharmaceuticals Incorporated

Advancing Adherence Through Technology
Read | Download Expired

Volume 7 - Supported by educational grants from Gilead Sciences, Inc, Vertex Pharmaceuticals Incorporated, AbbVie, Inc., and Chiesi USA, Inc.

Issue 12: CFTR Modulators: Clinical Insights
Read | Download Expired

Issue 11: Emerging Disease-Modifying Therapies in Cystic Fibrosis
Read | Download Expired

Issue 10: Screening and Diagnosis of CFRD
Read | Download Expired

Issue 9: Cystic Fibrosis-Related Diabetes: Screening and Diagnosis
Read | Download Expired

Issue 8: New Directions in CFTR Modification
Read | Download Expired

Issue 7: Genotype-Phenotype Correlation and Individualizing Therapy
Read | Download Expired

Issue 6: Nutritional Management for Individuals with CF: Practical Applications
Read | Download Expired

Issue 5: New Guidelines in Nutritional Management for Patients with CF
Read | Download Expired

Issue 4: Adherence – What You Should be Telling Your Patients
Read | Download Expired

Issue 3: Chronic Respiratory Therapies in Cystic Fibrosis: Addressing Adherence
Read | Download Expired

Issue 2: Weighing the Options in Managing Exacerbations
Read | Download Expired

Issue 1: CF Pulmonary Exacerbations: Known Unknowns?
Read | Download Expired

Volume 6 - Supported by Educational Grants from Gilead Sciences, Inc, Vertex Pharmaceuticals Incorporated, and Chiesi USA, Inc.

Issue 12: Future Landscape of CFTR Modulators
Read | Download Expired

Issue 11: CFTR Modulation: Today and Tomorrow
Read | Download Expired

Issue 10: Pseudomonas Eradication and Outcomes: Key Questions
Read | Download Expired

Issue 9: Pseudomonas aeruginosa Eradication and Outcomes: Key Questions
Read | Download Expired

Issue 8: Nutritional Issues in Cystic Fibrosis
Read | Download Expired

Issue 7: Nutritional Issues in Cystic Fibrosis
Read | Download Expired

Issue 6: Trends in Inhaled Antibiotic Therapy
Read | Download Expired

Issue 5: Trends in Inhaled Antibiotic Therapy
Read | Download Expired

Issue 4: Pulmonary Exacerbations and the Microbiology of the CF Lung
Read | Download Expired

Issue 3: Understanding the Microbiology of the CF Lung
Read | Download Expired

Issue 2: The Current State of CFTR Modification
Read | Download Expired

Issue 1: The Current State of CFTR Modifier Therapy
Read | Download Expired

Special Edition 2015 - Supported by educational grants from Gilead Sciences, Inc.

Special Edition: Breaking Coverage of CAT trial
Read | Download Expired

Volume 5 - Supported by educational grants from AbbVie, Gilead Sciences, Inc., and Vertex Pharmaceuticals Incorporated

Issue 14: Agents for the management of Pseudomonas aeruginosa infection
Download Expired

Issue 13: Antipseudomonal agents for the management of P. aeruginosa infection
Download Expired

Issue 12: Benefits of CFTR Modification Beyond FEV₁ Improvement
Download Expired

Issue 11: Benefits of CFTR Modification Beyond FEV₁ Improvement
Download Expired

Issue 10: The Effects of CFTR-modifying Therapies
Download Expired

Issue 9: The Effects of CFTR-modifying Therapies
Download Expired

Issue 8: Optimizing Nutrition in People with Cystic Fibrosis
Download Expired

Issue 7: Optimizing Nutrition in People with Cystic Fibrosis
Download Expired

Issue 6: Improving Digestive Capabilities in Nutritionally Compromised Patients with CF
Download Expired

Issue 5: Improving Digestive Capabilities in Nutritionally Compromised Patients with CF
Download Expired

Issue 4: P. aeruginosa eradication and reinfection
Download Expired

Issue 3: P. aeruginosa eradication and reinfection
Download Expired

Issue 2: Pulmonary exacerbations: diagnoses, and therapeutic regimens
Download Expired

Issue 1: Pulmonary exacerbations: diagnoses, and therapeutic regimens
Download Expired

Volume 4 - Supported by Educational Grants from Abbott Laboratories, Inc, Gilead Sciences, Inc, and Vertex Pharmaceuticals, Inc.

Issue 12: Featured Cases: What Does CFTR Tell Us About Lung Disease?
Read | Download Expired

Issue 11: What Does CFTR Tell Us About Lung Disease?
Read | Download Expired

Issue 10: Featured Cases: Behavioral treatment to improve dietary adherence and weight gain in children with cystic fibrosis
Read | Download Expired

Issue 9: Behavioral Treatment to Improve Dietary Adherence and Weight Gain in Children with Cystic Fibrosis
Read | Download Expired

Issue 8: Featured Cases: New Therapies in Cystic Fibrosis Directed Toward the Basic Defect
Read | Download Expired

Issue 7: New Therapies in Cystic Fibrosis Directed Toward the Basic Defect
Read | Download Expired

Issue 6: Featured Cases: Modifiers of CF Lung Disease
Read | Download Expired

Issue 5: P. aeruginosa Eradication
Read | Download Expired

Issue 4: Featured Cases: Strategies for the Improvement of Nutrition Outcomes
Read | Download Expired

Issue 3: Strategies for the Improvement of Nutrition Outcomes
Read | Download Expired

Issue 2: Featured Cases: Adherence to Chronic Inhaled Therapies
Read | Download Expired

Issue 1: Adherence to Chronic Inhaled Therapies
Read | Download Expired

Special Edition 2013 - Supported by educational grants from Gilead Sciences, Inc. and Vertex Pharmaceuticals, Inc.

Part 2: Highlights of the 36th European Cystic Fibrosis Conference
Read | Download Expired

Part 1: Highlights of the 36th European Cystic Fibrosis Conference
Read | Download Expired

NACFC Special Edition 2013 - Supported by an educational grant from Aptalis Inc.

Special Edition: Highlights of the 27th Annual North American Cystic Fibrosis Conference
Read | Download Expired

Special Edition 2012 - Supported by an Educational Grant from Gilead Sciences, Inc.

Part 2: Highlights of the 35th European Cystic Fibrosis Conference
Read | Download Expired

Part 1: Highlights of the 35th European Cystic Fibrosis Conference
Read | Download Expired

Volume 3 - Supported by Educational Grants from Abbott Laboratories, Inc, Gilead Sciences, Inc, and Vertex Pharmaceuticals, Inc.

Issue 12: Featured Cases: Emerging Pathogens in Cystic Fibrosis
Read | Download Expired

Issue 11: Emerging Pathogens in Cystic Fibrosis
Read | Download Expired

Issue 10: Featured Cases: Interventions to Improve Nutrition in Patients with CF
Read | Download Expired

Issue 9: Interventions to Improve Nutrition in Patients With Cystic Fibrosis
Read | Download Expired

Issue 8: Featured Cases: The Role of Exercise and Physical Activity in Optimizing Outcomes Among Patients with CF
Read | Download Expired

Issue 7: The Role of Exercise and Physical Activity in Optimizing Outcomes Among Patients With Cystic Fibrosis
Read | Download Expired

Issue 6: Featured Cases: Modifiers of CF Lung Disease
Read | Download Expired

Issue 5: Modifiers of Cystic Fibrosis Disease
Read | Download Expired

Issue 4: Featured Cases: Pulmonary Exacerbation Therapies
Read | Download Expired

Issue 3: Pulmonary Exacerbation Therapies
Read | Download Expired

Issue 2: Special Edition: Highlights of the 34th European Cystic Fibrosis Conference
Read | Download Expired

Issue 1: Special Edition: Highlights of the 34th European Cystic Fibrosis Conference
Read | Download Expired

Volume 2 - Supported by Educational Grants from Abbott Laboratories, Inc, Gilead Sciences, Inc, and Vertex Pharmaceuticals, Inc.

Issue 12: Featured Cases: New Inhalation Therapies
Read | Download Expired

Issue 11: New Inhalation Therapies
Read | Download Expired

Issue 10: Featured Cases: State-of-the-Art Treatment for CF Lung Disease
Read | Download Expired

Issue 9: Guidelines: State-of-the-Art Treatment for CF Lung Disease
Read | Download Expired

Issue 8: Featured Cases: Vitamin D and Bone Health
Read | Download Expired

Issue 7: Vitamin D and Bone Health
Read | Download Expired

Issue 6: Featured Cases: Nutritional Challenges and Complications in Patients with Cystic Fibrosis
Read | Download Expired

Issue 5: Newborn Encephalopathy
Read | Download Expired

Issue 4: Featured Cases: Allergic Bronchopulmonary Aspergillosis (ABPA)
Read | Download Expired

Issue 3: Allergic Bronchopulmonary Aspergillosis (ABPA)
Read | Download Expired

Issue 2: Featured Cases: Cystic Fibrosis–Related Diabetes
Read | Download Expired

Issue 1: Cystic Fibrosis–Related Diabetes
Read | Download Expired

Volume 1 - Supported by Educational Grants from Genentech, Inc, Vertex Pharmaceuticals, Inc, Eurand Pharmaceuticals, Inc, and Axcan Pharma, Inc.

Issue 6: Optimizing Nutritional Status in Cystic Fibrosis
Read | Download Expired

Issue 5: Measurement of Early Lung Disease in Children With Cystic Fibrosis
Read | Download Expired

Issue 4: Emerging Pathogens in Cystic Fibrosis
Read | Download Expired

Issue 3: How to Interpret Genetic Tests for Cystic Fibrosis
Read | Download Expired

Issue 2: Issues in Lung Transplantation for Cystic Fibrosis
Read | Download Expired

Issue 1: Issues Related to Newborn Screening
Read | Download Expired

Special Edition 2019

newsletter

Adherence & Technology

Old Newsletter Archive